Oh the places you’ll go…

“You have brains in your head. You have feet in your shoes. You can steer yourself any direction you choose. You’re on your own. And you know what you know. And YOU are the one who’ll decide where to go…”
Dr. Seuss, Oh, The Places You’ll Go!

For those who regularly read my bog and twitter feed (@AC_MentalHealth) you will have noticed that there has been a distinct lack of posts recently.

Lying in bed last night, I stumbled across the above quote and felt that it was more than apt to my current situation. Things may not go to plan, but it is me in the driving seat and I have control of which way I steer.

It’s pretty obvious that I absolutely love my job. I started working in a regional office of a London firm in March of this year as an Admin Assistant. The hope was to work my way up with the firm and, in a perfect world, secure the elusive training contract that every law graduate in the country would also be applying for.

Six months on, I have worked my way up to the position of Mental Health Caseworker with Admin responsibilities. When I tell people my role, a lot of people have absolutely no idea what it means. A few of my family, through no fault of their own, simply lack of knowledge, thought that mental health law meant that someone with mental health issues had committed a crime and mental health lawyers try to ‘get them off’.

The role of a mental health lawyer is to ensure that the rights of those with mental health problems are upheld. For me, it’s about protecting the most vulnerable in society. Now, some people with mental health problems are detained under the Mental Health Act if they are really unwell, but that doesn’t at all mean that the person has done something wrong. There is something called a ‘forensic section’ which deals with those who have committed crimes, but, generally, those detained under the MHA are just like you or I and Doctors simply feel that they ought to be in hospital for assessment (section 2) or treatment (section 3). There are other sections but these are the most common.

Now, on Facebook recently, a fellow Warwick University Graduate who works as a mental health paralegal in London, posted a status saying that he was representing someone detained under the MHA at a Hospital Managers’ Hearing the next day. It’s safe to say that I was incredibly jealous! Then, someone who I don’t know, commented on the status saying that he was a junior doctor in psychiatry and asked why the person was detained. My friend said that the gentleman had schizophrenia with paranoid ideations. To this, the JUNIOR DOCTOR IN PSYCHIATRY replied “then why are you contesting it. Dude needs help”. Well, that got me angry, because help isn’t always a hospital.

The role of the mental health solicitor/paralegal is to advance the rights of the client, so if they say that they would like to be discharged from hospital then this is what we tell the Tribunal or Hospital Managers’ when the person appeals their section, with arguments added that discharge would be appropriate. We’re not ‘getting people out’.

For some people, being in hospital can make them worse. Especially if the ward is particularly disruptive, and where drugs are rife that can make things a lot harder. Assessing/treating those with mental disorder should not be about keeping someone in hospital until a doctor decides that they’re better. It’s about the individual, who may find it helps more to be at home with community psychiatric support, than in the often chaotic surroundings of a ward.

Anyway, I digress. What I’m trying to say, and what I could have said in eight words is, I really love working within mental health law.

And that’s when the rug of contentment was pulled right from underneath my feet…

All employees at my Firm were recently given notice of redundancies. Such an unexpected life-changing shock isn’t the best for someone with anxiety disorder. For the past week, I have had the worst headaches, and I never get headaches. Although, interestingly, there was no headache on Wednesday when I had my University day. It’s difficult because I got to the point where the stress of not knowing what was going on was really starting to become an issue, but I felt that I couldn’t say anything because of that fear of mentioning anything related to my own mental health having a detrimental impact on my future, as if it would show that I “can’t hack it”. Of course, that’s me being ridiculous but it is how the vast majority of those with mental health issues feel.

When I told my Grandma that I was potentially losing my job, she said “well you’ll just have to get another one won’t you”. God, if only it was that simple! Basically, there are no mental health paralegal jobs being advertised for in the whole of the North East, so that isn’t looking great.

All I can hope is that I will be able to continue doing the work that I love, wherever that may be. For now, I need to focus on my own mindfulness and wellbeing. One thing is for sure though, I won’t give up because I’ve worked too hard for that.

Dr Seuss is right, and every time I see my #semicolonproject tattoo, I’m reminded that I can conquer anything.

semicolon project

Community Treatment Orders – What are they and are they effective?

It is possible for someone who has been detained under the Mental Health Act 1983 (MHA) to be discharged from hospital and placed on a Community Treatment Order. CTOs were introduced in late 2008. Effectively, a CTO is the least restrictive option for providing treatment, as it allows people to be monitored whilst remaining in the community, as opposed to being detained in hospital further.

A CTO can be placed on a patient detained under section 3 or section 37 MHA 1983. These are the only sections under which someone may be placed on a community treatment order. To be clear, section 3 lasts for an initial period of six months. This can be renewed for a further six months and then yearly following that. Someone will be placed on section 3 if they are well known to mental health services or have been in hospital before, or if they have previously been detained under section 2 for assessment. Section 3 is for treatment. Section 37, on the other hand, is a hospital order imposed by a court, with the recommendation of two doctors, instead of a prison sentence. Section 37 lasts for an initial period of six months, renewable for a further six months, and subsequently yearly.

The Responsible Clinician (the person responsible for the person’s treatment) can discharge a patient from hospital and provide supervised treatment whilst the person is in the community. Prior to granting a CTO, the Responsible Clinician must ensure that certain conditions are met: the person has a mental condition that requires medical treatment; treatment is required for the person’s health or safety, or for the protection of others; the person is able to continue their treatment in the community; the person can access the right treatment in the community; and, it is justified that the person can be recalled to hospital if necessary. The Responsible Clinician ought also to consider the risk of a deterioration in the person’s condition were they not detained in a hospital.

If necessary, the Responsible Clinician can recall the person back to hospital. Recall could occur if the conditions set out prior to discharge are not complied with or if the person becomes unwell again. One condition may be that the person must continue taking their medication, or must reside at a certain place.

If recalled back to hospital, a person can be held for up to 72 hours whilst what should happen next is deliberated. It may be that the CTO is revoked and the person can be placed back on the section that they were on prior to discharge into the community. Alternatively, if all conditions are complied with and the person is deemed fit to be fully discharged by the Responsible Clinician, then the person can be discharged from the CTO and the conditions of that will no longer operate.

The purpose of the CTO when introduced was to end the ‘detrimental cycle’ of patients being discharged from hospital, stopping taking their medication and ending up back in hospital. In effect, the CTO could be viewed as a practice run for discharge where the risk of relapse and re-detention is (hopefully) reduced. According to the Minister of State when discussing supervised community treatment, “the power of recall provides the means to tackle relapse, and to avoid its potentially adverse consequences for the patient or someone else. Recall to hospital allows patients to be treated quickly and to return to the community straightaway if it is clinically safe to do so”.

It is possible for the Responsible Clinician to grant the patient a section 17 long-term leave of absence, rather than a CTO, and the Responsible Clinician must ‘consider’ whether the patient should be dealt with using long term leave. Research (T Burns et al) has actually shown that, when compared with patients who are on section 17 leave, the imposition of CTOs does not reduce the rate of readmission to hospital, with around one third of each group being readmitted within a year. The findings of this study backed up two previous studies that had also found no benefit from CTOs in reducing readmission. This conclusion has, however, been disputed by a number of people.

The study came at a time when most mental health services were reorganised thus the care of those participating in the study was passed to psychiatrists who were not necessarily familiar with the trial. It also did not assess to what extent people took their prescribed medication – something which, of course, is incredibly important when looking at re-admission.

CTOs are established in over 70 jursidictions and have existed since the 1980’s/90’s in most parts of North America and Australasia. The law on CTOs does not explicitly state what standards should be used to assess their effectiveness, though frequency of contact with out-patient services, victimisation, arrest, mortality and quality of life tend to be used in studies testing their effectiveness.

In 2008, when CTOs were first introduced, Lawson-Smith et al stated that “Community Treatment Orders should arguably be used on a restricted group of patients who suffer from severe and relapsing mental illness, who quickly disengage and are repeatedly re-admitted’. It has become clear that CTOs are not used on a limited basis at all – according to statistics from The Health and Social Care Information Centre, between 2008 and March 2014, the number of people subject to CTOs has seen an increase of 206%. In that same period, the number of people detained under section 3 MHA 1983 has decreased. The link between this reduction and the increase in CTOs appears more than coincidental, given that patients subject to a CTO can be recalled to hospital, rather than re-assessed under the MHA.

In 2009, The Guardian published an article entitled ‘Hazards of a Health Safeguard’. The article included a lady who was subject to a CTO, one of the conditions of which was that she had to have blood tests every two months to prove that she had been taking her medication. She stated that doing so made her feel like “a laboratory rat”. Whilst it is understandable that those subject to CTOs will feel some frustration, the conditions are there for a reason – for the health or safety of the person or for the protection of others. If someone is discharged entirely from hospital and does not take their medication, they will simply end up being re-admitted. These CTOs operate to try to curtail that trend and, whilst CTOs have received stark criticism, the one major study on them (mentioned above) is in fact fraught with criticism. And, with regard to how those subject to CTOs actually feel about them, there appears to be no research at all on this in the UK.

Research on the effectiveness of CTOs in improving the quality of life of those subjected to them has been conducted in other countries – it looked at 752 people and concluded that “results from the trials showed overall that compulsory community treatment was no more likely to result in better service use, social functioning, mental state or quality of life compared with standard ‘voluntary’ care”. The research did, positively, find that “people receiving compulsory community treatment were less likely to be victims of violent or non-violent crime”. We should perhaps not place too much weight on this research, given that the quality of evidence for the main outcomes of the trials were recorded as ‘low to medium grade’.

At this stage, the only conclusion that can be drawn regarding the effectiveness of CTOs is that further research is needed. There is strong opposition towards CTOs, yet many professionals view them as necessary – placing a patient on a CTO means that they cannot deteriorate to the point where it is necessary for them to spend a long period in hospital. If the patient does not meet their conditions then they can be recalled to hospital, stopping them from going for X amount of months without their medication and, in most cases, exacerbating their mental health issues.

Those who are placed on a CTO, like the woman mentioned in The Guardian article above, may view the conditions placed on them as unnecessarily restrictive. It is understandable that it may seem this way, given that the patient is not returning to ‘normality’ per se. However, being able to live in the community rather than a hospital has to be viewed as much less restrictive. In effect, it is giving patients a chance and I don’t see how that could be a bad thing.